Useful references

Prior Art/Other User groups in existence

• https://www.communicationmatters.org.uk/research/research-involvement-network/

• https://aac.dundee.ac.uk/user-centre/

• https://isaac-online.org/english/news/pwuaac-online-chats/

• https://www.thebraintumourcharity.org/get-involved/volunteering/get-involved-in-research/research-involvement-network/

• http://www.nottsmaternity.ac.uk/userinvolvement.aspx

Also read: https://www.jrf.org.uk/sites/default/files/jrf/migrated/files/1410-user-networking-knowledge.pdf (& https://www.jrf.org.uk/report/making-user-involvement-work-supporting-service-user-networking-and-knowledge)

https://academic.oup.com/bjsw/article-abstract/40/5/1591/1725261?redirectedFrom=fulltext&login=false

Regarding paid-for participation:

• https://www.scottishhumanrights.com/media/2251/paid-participation-report-vfinal.pdf

• https://www.entitledto.co.uk/help/benefits-charity

• https://www.cipd.co.uk/knowledge/fundamentals/emp-law/disability-discrimination/factsheet

• https://www.healthcare.ac.uk/wp-content/uploads/2021/04/NIHR-CED-Payment-Guidance-for-PPI-Kingston-Event-presentation-Silvia-Bortoli-21-April-2021-External.pdf

• https://www.nihr.ac.uk/documents/payment-guidance-for-members-of-the-public-considering-involvement-in-research/27372#Use_of_high_street_or_gift_vouchers

• https://www.england.nhs.uk/wp-content/uploads/2017/08/easy-read-patient-and-public-voice-partners-expenses-policy-oct-17-to-use.pdf

• https://www.england.nhs.uk/wp-content/uploads/2017/08/B0869_Working-with-patient-and-public-voice-partners-reimbursing-expenses-and-paying-involvement-payments.pdf

• https://touchstonesupport.org.uk/wp-content/uploads/2020/06/Paying-Service-Users-and-Carers-Policy-Agreed-2020.pdf

• https://www.involve.org.uk/resources/knowledge-base/what-impact-participation/benefits-and-costs-public-participation

• https://www.scie.org.uk/co-production/supporting/paying-people-who-receive-benefits

• http://folkus.exeter.ac.uk/files/the_impact_of_paying_users_for_their_involvement.pdf